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Information on the latest vitamin D news and research.

Find out more information on deficiency, supplementation, sun exposure, and how vitamin D relates to your health.

Hi, 2 months ago, found myself being woken up at night with severe pins and needles in my left hand and not so severe in right hand, this was then followed by jabbing pains in my right shoulder blade and right hip, after couple of weeks with this getting worse went to my doctor, who arranged an array of blood tests, mentioning rheumatoid factor. I am 50 this year since 35 have 100% vitiligo and since 40 diagnosed with Under active Thyroid on 100mg Levothyroxin. With these auto-immune issues and fact RA is active on my Father's side family, waited for inevitable news. In meantime, ankles started puffing up and knees also went in a month from being very active and supple (Martial Arts Instructor 6th Dan) to hardly being able to kick or punch at all?! Pins and needles got worse and not every night but several nights woken with mainly sore right hand. I have always "suffered" joint discomfort for decades putting that down to bad motorcycle accident at 18 and me ageing and continue to train these 36 years as if a teenager?! I have also been on Flouxetine for some years for "Depression" but best explained as "can't be bothered" feeling tired and sorry for myself. A week ago was relieved and surprised to learn Rheumatoid factor negative all other tests negative or normal, however, was severely Vitamin D deficient?! I have been prescribed Fultium D3 at 20mg capsules per day for 12 weeks…my concern however, is a week down the line feel even more tired and ankles and knees feel puffed up constantly and hands pins needles burning feeling worse, thumbs joint really sensitive and now effecting my sleep?! I am also myself now taking these supplements: Vit B Complex, Vit C, Prebiotic, Omega 369, Selenium, Magnesium. When will there be ANY sign of improvement???

Ask the Vitamin D Council

Asked by  john.lightbody.jl22445600 on February 27, 2016

Answers
  •  john.lightbody.jl22445600 on

    See title

    Answered by  john.lightbody.jl22445600 on

  • IAW
    Participant
     IAW on

    Fultium D3 at 20mg equals 800iu. You will never see a sign of improvement because it is NOT Enough.
    Since I do not know how low your level was or how much you weigh, you will need to take somewhere between 5000-8000iu of D3 a day to get better. You also need to read http://www.vitamindcouncil.org/about-vitamin-d/vitamin-d-and-other-vitamins-and-minerals/. Any magnesium taken should NOT be magnesium oxide
    Autoimmune conditions/diseases are caused by lack of Vitamin D.
    You are aiming for a Vitamin D level of 50ng/ml (125nmol/l) or better. To solve most if not all of your health issues (all of them can be contributed to lack of Vitamin D) you may have to get your levels between 50ng/ml to 100ng/ml (250nmol/l).
    Let me know if you have any more questions!

    Answered by  IAW on
  •  john.lightbody.jl22445600 on

    My level was 12, I am 5ft 10 and just under 12 stone. I bought my own tablets last week D3 10000IU 11MG per capsule. Take these instead of prescribed Fultium D3 then? Why would my Doctor only give me 800IU when he WAS on the ball enough to have checked my Vit D first examination? Weird. I just detest this feeling, my hands are puffed up now also and are tingling constantly. A time frame was not given by Doctor on improvememt, just said to complete 12 week prescription and then be retested?? As said actually feel worse this last week?

    Answered by  john.lightbody.jl22445600 on

  • IAW
    Participant
     IAW on

    Yes, take 10,000iu every day. If you develop any new symptoms it will probably be because of not enough magnesium but please come back and tell me. Yes he should retest you to make sure you have improved.
    He was on the “ball” enough to test you because at least “part” of the message is making it to main stream medicine. That message is that the bottom end of the range is 20ng/ml or 8nmol/l (at my lab it is 30ng/ml). Many people fall under this bottom end. So his goal is to get you to probably 20ng/ml.
    Since official government agencies have not acted yet, by setting new standards, most doctors believe having a level of 20ng/ml is acceptable. Unfortunately there is overwhelming evidence that higher levels are needed to keep a human healthy. This is why the Vitamin D Council and several other sites exist to try and “get the word out”.
    Now if you take the 10,000iu of Vitamin D, for lets say a minimum of 3 months and not all of your symptoms go away (hopefully they will), then come back and tell me.

    Answered by  IAW on
  •  john.lightbody.jl22445600 on

    Thank you very much for your responses and help? May I further ask surely the lowering of Vitamin D in my system was gradual thing over a period of months years…. my concern being just how quickly the pins and needles and swelling of fingers, wrists, puffing up of ankles, calf muscles and stiffening of knees came on. There has hardly been a day in the last 4 weeks without pins and needles of hands etc. Monday morning there was xlnt as woke up with little of above whatsoever, only by later that afternoon, back to square 1. Today as an example, hands have been terrible with my thumbs really painful on certain movements and now this evening feeling like I have been victim of a stampede?! Do I start on Magnesium also or get back to Doctors, really weird a Vitamin D deficiency causes such discomfort?!

    Answered by  john.lightbody.jl22445600 on

  • IAW
    Participant
     IAW on

    Well I would say that you have been deficient since at least age 35. I think you are asking why the “pins and needles” came on all the sudden. You said the doctor checked everything out (so I assume he did a good job) and only found the D deficiency. I think you just finally reached your breaking point. Have you been under any unusually big stress issues before this started either physically like surgery or mentally?
    When you started this thread I thought you were taking magnesium??? Hopefully you are taking between 500-800mcg a day.
    Maybe you would like to read http://www.ncbi.nlm.nih.gov/pubmed/24494059. They used 35,000iu of Vitamin D a day.
    You may also like to read http://www.webmd.com/brain/tingling-in-hands-and-feet to double check what the doctor tested for.
    I also assume that someone is checking your thyroid levels.

    Answered by  IAW on
  •  john.lightbody.jl22445600 on

    My Thyroid levels were checked and were normal, Glucose normal and my Rheumatoid factor was checked and came back <20 (he said negative)…. really had myself believing was Rheumatoid Arthritis as runs in Fathers side of family and I already have 2 auto-immune issues since 35?! Had no injury. trauma or surgery, nothing stressing me until pins and needles started late January. I started taking Magnesium Oxide but your first reply to me said not to take this? These last two nights have been dreadful, my left hand is woken me with pain during the night and the last 48 hrs wrists are really sensitive to movement and some movements of thumbs give an electric shock feeling?! Ankles are slightly puffed up as are calves and shins, knees not visibly puffed up by stiffer on movement. Early January I was doing full splits at my Martial Arts (am 6th Degree Black Belt Instructor), moving very speedily and with ease, however, in 6 weeks have degenerated into old man syndrome?? Help??

    Answered by  john.lightbody.jl22445600 on

  • IAW
    Participant
     IAW on

    So I did say you need to take 500-800mcg a day of any magnesium but not oxide. You can take oxide but it is not nearly as good as other magnesiums.
    You said you bought your own capsules and that they are 10,000iu (ten thousand) and not 1,000iu (one thousand). I assume you are taking them??
    Even if you had Rheumatoid Arthritis, it is autoimmune and caused by lack of Vitamin D. (So the fix would be Vitamin D.)
    It will take take at least several months to recover.
    I hinted above that they used 35,000iu a day for 6 months.
    If I were you I would also find out the actual results of your thyroid test(s) and compare them to the previous ones.
    You probably have adult rickets.

    Answered by  IAW on

    • Annette
      Participant
       Annette on

      Can I suggest you purchase some magnesium chloride oil and apply this a few times a day particularly over the painful areas. It is absorbed through the skin and helps boost mg levels. You can also soak in a bath with 2 cups of either magnesium chloride or Epsom salts – soak for at least 20 minutes. Check out Magnesium Chloride on the web as there is lots of info from Dr Carolyn Dean, Mildred Seelig and Mark Sircus about using Magnesium orally and transdermally.

      Answered by  Annette on
  •  john.lightbody.jl22445600 on

    Hi IAW, am very grateful for your support and quick responses! Thyroid test showed no change from previous levels which were “normal”, this has been monitored every 6 months as been on Levothyroxin 100mg for several years. I am now taking my own 10000IU (11MG) D3 supplements for past week (was on Fultium 800IU 20mg for 10 days prior to this) should i up this to 20000IU a day?? and have been taking 1 capsule 250mg of my Magnesium (Oxide) each capsule also for past week now and will order an alternative source of Magnesium to take (can you recommend please?), i will up qauntity of MgO until other ones come in. Interesting to read “even if had RA..,fix would be Vitamin D”. I was under the impression RA is entirely incurable? The symptoms being experienced in my hands and wrists, last night 3rd night in a row awoken by left hand numb/burning sensation (constant pins/needles 2 middle fingers, more left hand than right but both, and movement of thumbs sore and weaker as well as sore wrists with restricted movement these last couple of weeks, knees feel the same as wrists (but not sore) to a lesser degree and puffed ankles (but not sore) visible to eye)….I will be phoning my health centre today to arrange another appointment, the Doctor never did advise what to expect over 12 week period of taking prescribed Vit D as most has been self taught, thanks to your excellent website etc. oh neither did he suggest taking Magnesium, Vit K etc?!
    John

    Answered by  john.lightbody.jl22445600 on

  • IAW
    Participant
     IAW on

    As for magnesium, anything that ends in an “ate” (citrate, taurate… ) is good or chloride.
    My very first response back to you after you originally posted stated “Autoimmune conditions/diseases are caused by lack of Vitamin D.” I’m not sure that registered with you because of your last response “even if had RA..,fix would be Vitamin D”.
    So I am not a doctor or scientist but I can “google”. I would like to rescind my “rickets” statement and go with RA.
    Your symptoms are RA. At https://www.nlm.nih.gov/medlineplus/ency/article/003548.htm it states for diagnosis “Less than 1:80 (1 to 80) titer.” “A low number (normal result) most often means you do not have rheumatoid arthritis or Sjögren syndrome”. “HOWEVER, some people who do have these conditions still have a “normal” or low RF.” The <20 could mean you have a level of 19 but since you are < you are “negative” to them.
    Just so you understand most research right now goes into proving lack of Vitamin D is causing disease. (Let me tell you that I have followed the research and thrust me there is enough already that proves it does.) The point is there is not a lot of studies, like the one I mentioned above that use “adequate” amounts of Vitamin D to try and improve or cure a diseased state.
    A word of warning if you try and tell the doctor you are taking 10,000iu you will get one of two responses. You will kill yourself taking that much Vitamin D or he has never heard of such a thing and does not know what to say. (You could take a copy of this with you http://www.ncbi.nlm.nih.gov/pubmed/24494059 that was listed above.)
    This is “locked” for member viewing only at https://www.vitamindcouncil.org/blog/13980/ but it is about a person with RA. They cured themselves by taking 15,000iu and then eventually maintaining on 10,000iu. One of our members at that blog stated that their wife was taking 20,000iu for chronic pain, increased that to 35,000iu and pain stopped. Her doctor then made her decrease back to 20,000iu and the pain returned.
    So if it were me, in your diseased state with three autoimmune conditions, I would be taking a lot. Probably the 35,000iu a day or maybe even more.
    I have asked several people that have posted at Q and A to “update” their progress as they go a long. That way I will have something to tell the next person asking “just how long will it take for me to get better.” So if you could do the same, I would sincerely appreciate it!!!
    If you have any more questions, please ask!

    Answered by  IAW on
  •  john.lightbody.jl22445600 on

    Hi, quite despondent at thought may be developing RA, watched it destroy 2 of my beloved Aunts albeit couple of decades ago. Disillusioned immensely with GP, whom prescribed Fultium D3 800IU itself too little and with carcinogenic ingredients banned in USA and certain EU countries?! Also the fact he offered no inclination of what lay ahead with Vit D deficiency nor the need to take cofactors like Magnesium and K2?!

    May I please ask you look at following supplements I have and advise what, when best to take and quantities i.e separate Levothyroxin from Magnesium etc?

    Levothyroxin 100mcg tablets
    10000IU Vit D3 capsules
    Probiotic Prebiotic tablets
    Vit C Absorbic Acid 1000mg tablets
    Vit B1,2,3,5,6,7,9,12 Complex tablets
    Vit B12 1000mcg tablets
    Vit K2 100ug tablets
    Omega 369 1000mg capsules
    Magnesium Oxide 400mg capsules
    Magnesium Citrate 100mg tablets
    Selenium 200ug tablets
    Flouxetine 20mg capsules

    Answered by  john.lightbody.jl22445600 on

  • IAW
    Participant
     IAW on

    So I also take levothyroxine. On the official site it says not to take iron, calcium or antacids within 4 hours of taking the levo. I personally take a multi vitamin with magnesium and added magnesium in the morning anywhere from 2-4 hours of taking my levo and it does not affect it. So I would keep taking everything as you normally do. I would take all of the Vitamin D in the morning. I would split the magnesium up and take it at least twice if not three times a day. (If the oxide is 400mcg in one tablet then take that at one meal and take another 200 of citrate at another meal and another 100 before bed.)
    You will probably need more than the 10,000iu per day of Vitamin D, so just keep that in mind. You should be able to make yourself better and beat the RA but it will only happen with the Vitamin D.
    Now there is absolutely no basis or fact to what I am going to say next. You are taking the Flouxetine. I try and warn people that take medicines that Vitamin D can repair lot’s of things and one of them is depression. So keep in mind the “symptoms of high levels of serotonin in the body” – agitation, hallucinations, fever, fast heart rate, overactive reflexes, nausea, vomiting, diarrhea, loss of coordination, fainting; For all we know Vitamin D might increase Serotonin levels and then you could end up with too much.
    “Chin up” you will be OK!!

    Answered by  IAW on

    • IAW
      Participant
       IAW on

      John back in 2013 someone with RA wrote a letter to the VDC and said he had cured his RA after seeing a new doctor that prescribed 15,000iu of Vitamin D a day. He started feeling better within days and maintains on 10.000iu a day. He could stop his RA meds within a month of starting the D and actually had the RA for a minimum of 10 years.

      Answered by  IAW on
    •  john.lightbody.jl22445600 on

      IAW, cant thank you enough for your help and support….will keep you updated.
      I have Doctors appointment tomorrow as hands (particularly left one) are really bothering me with pins and needles, middle finger left hand has been numb constantly for nearly two weeks?! Wrists tender and stiffer and slight tenderness of hands when trying to clench a fist with slight feeling of swelling also but not visible as such?! I will not get into the debate with him on the whole Vit D thing as you have mentioned I think there are obviously those who have more knowledge in Vit D and its life enhancing and fundementally required need to be in ones system!

      Answered by  john.lightbody.jl22445600 on
  •  john.lightbody.jl22445600 on

    Saw Doctor today, he checked my hands and got me to try some exercise tests, and says it’s Carpal Tunnel Syndrome. However, can’t explain slightly puffed up ankles and calves and slight stiffness in knees being felt nor my tiredness, he then looked at my blood results again….my Vit D level waSaw Doctor today, he checked my hands and got me to try some exercise tests, and says it’s Carpal Tunnel Syndrome. However, he can’t explain slightly puffed up ankles and calves and slight stiffness in knees being felt nor my tiredness, he then looked at my blood results again….my Vit D level was 30, heaven knows what number was 12 he gave me?! Then he advises also was anaemic and ESR slightly elevated at 52mm?! Why didn’t I get this back at original appointment 26th Feb?!! Took another blood test today and has arranged for me to be seen at hospital to confirm CTS and get fix. Await new test results to see if the Rheumatoid Factor goes up and what ESR will read? Started B12 yesterday…now another wait postulating what will come back?!

    Answered by  john.lightbody.jl22445600 on

  • IAW
    Participant
     IAW on

    Ok John do you live in the UK? If so they measure Vitamin D as nmol/l and not ng/ml. So this would mean your Vitamin D level translates to 30/2.5 = 12ng/ml. So if you measure as ng/ml we recommend a level of 50ng/ml if you measure as nmol/l then you want a minimum level of 50 * 2.5 = 125nmol/l. So you tell me are you deficient or not?
    Vitamin D deficiency also causes carpel tunnel syndrome.

    Answered by  IAW on
  •  john.lightbody.jl22445600 on

    Yes Scotland, Doc said was D deficient looked at screen didn’t notice measurement being used but was number 30. Also anaemic and had ESR 52mm, these two things was just Thursday was pointed out to me as went back to Docs as hands were getting worse. He said CTS for hands and blood taken again, with hospital appointment for confirmation and to rule out or double check for cause of puffed up ankles and calf muscles. Presently no other joints other than hands causing localised pain but most definitely an all over body stiffness and discomfort?! Getting tres fed up.

    Answered by  john.lightbody.jl22445600 on

  • IAW
    Participant
     IAW on

    They use the nmol/l measurement in Scotland. You are VERY deficient. Most doctors do not have any up-to-date information on Vitamin D so they will not be able to help you in that respect.
    It has been two weeks since you started this thread. On 3/6 you asked me when to take the supplements. Have you taken ANY Vitamin D yet at the 10,000iu amount? If you have and have not added any new symptoms, then I would go to 30,000iu a day.
    If I have not already said this, in a Vitamin D deficiency state you really need big amounts up front to get your levels up and start repairing things, later on when you are dong better then you need a smaller, maintenance dosage.
    A Vitamin D deficiency will cause anemia and high inflammation rates in the body.
    Ryan McLaughlin is a young male who lives in Scotland and has been trying to promote Vitamin D awareness for years!

    Answered by  IAW on
  •  john.lightbody.jl22445600 on

    Hi, I take my Levothyroxin early in morning and couple of hours later have been taking 10000IU for nearly 2 weeks along with Magnesium Oxide & Citrate (in mix you advised) along with K2, C, B12, Selenium, Omega 369, Pro & prebiotic. No new systems as such, hands kanckered, weak, pins needles (left worse than right), am so lethargic and rest of body feels sore and heavy….will up qty to 3 capsules of D3, mood wise have seen improvement and thats without my Flouxetine as you had recommended.

    Answered by  john.lightbody.jl22445600 on
  •  john.lightbody.jl22445600 on

    Attended Doctors again today, ESR has increased from 52 to 72 however, CRP level <10. You are indeed correct my 25-OH Vit D of 33 was measured nmol/L. I have been forwarded to a Rheumatologist, last few nights not being woken by hands, and last 48 hrs pins and needles have decreased, but replaced with increased pain when using hands ?! And rest of body tender…….now on 30000IU and Magnesium/K2 etc, fingers crossed……

    Answered by  john.lightbody.jl22445600 on

  • IAW
    Participant
     IAW on

    FINGERS CROSSED!!!!!

    Answered by  IAW on
  •  john.lightbody.jl22445600 on

    Help……as you will gather, am a bit of a worrier despite being a Martial Arts instructor?!
    Saturday 19th awoke feeling pretty good indeed, so much so decided to do some of my Martial Arts training for an hour (missing badly as have practiced without fail weekly for 36 years)…..man this was silly me thinks?! Within a few hours of stopping became utterly fatiqued!!! Sunday awoken 5 am with sore hand again, whole of yesterday felt awful, ankles and calves puffed up but worst of all my knuckles and wrists of both hands visibly puffed up while rest of body just so sore and heavy feeling?!?! Why does fluxuate so much, have been on 30000IU and K2/Magnesium for over a week now, is the replenishment process so fickle and prolonged? Yesterday has all of a sudden made me feel very depressed and fed up.
    I am also at loose end as to knowledge of whats the matter with me and the support from my own GP?! I have received far more help and support from this Forum and yourself IAW?! Thank you……

    Answered by  john.lightbody.jl22445600 on

  • IAW
    Participant
     IAW on

    Yes, “silly me thinks”!
    I was so afraid when I saw you had posted! I thought maybe you tried the 30,000iu and were now in worse shape with all sorts of new symptoms.
    First you need to keep telling yourself that you have really been deficient for probably a minimum of 15 years and that you will not get completely better “overnight”. The Vitamin D Council hopes to someday have a database of doctors that will have a lot of knowledge about Vitamin D and how to “treat” with it and we would just be able to send you to them. BUT this is now. So all I can do is feed you the information that I have learned from Dr. Cannell over the years and the people that have written in with their success stories.
    Having said all that you can go read http://www.vitamindwiki.com/Autoimmune+disorder+patients+in+Brazil+helped+by+vitamin+D+%E2%80%93+video+and+Facebook+%E2%80%93+Nov+2012. Even though it is discussing Multiple Sclerosis it still applies to you because it is “autoimmune”.
    Your welcome!

    Answered by  IAW on
  •  john.lightbody.jl22445600 on

    Hi, of cocktail of vitamins & minerals, which might be responsible for diarrhea?? Past week all stools loose each bowel movement? And wouldn’t say as such another symptom, however, certainly worsening….both hands/wrists painfull on any movement. Right middle finger knuckle looking inflammed while palm under right index finger small lump appeared?! Still awaiting Rheumatologist appointment, our British NHS is payable via monthly tax not via insurance or by billing, not sure whats better as cannot bring appointment forward, 3 weeks at least to wait was told?!

    Answered by  john.lightbody.jl22445600 on

  • IAW
    Participant
     IAW on

    Loose stools is likely too much magnesium!
    Sorry that your hands are not doing better.
    Since I am not a doctor, I do not know what else to tell you. If lack of Vitamin D has caused too much damage, then maybe some cannot be repaired even with large amounts of Vitamin D. Could be it is just going to take a really long time.
    If you can you could also go back and see what thyroid test was done and what the results were. If you can also go back to the second to the last time it was tested and get those results, that would be extremely helpful. (I know a lot about hypothyroidism and it is not as easy as the medical profession would like you to think. I am looking for a significant increase, probably in a TSH test between this last one and the one before that. Yes you would still be in the “range” but it would not be good.)

    Answered by  IAW on
  •  john.lightbody.jl22445600 on

    Hi,

    had to attend out of hours Doctor Saturday 26th March morning as had enough, hands/wrists very sore and also very dizzy on my feet, diarrhea and inflammed legs going purple at ankles?! (Think I saw Grim Reaper in my garden this morning?!). Was taken straight away, young Doctor mesmerised I hadn’t been given some anti-inflammatories earlier?! He agreed with dosing up on Vitamin D and its cofactors, which was bloody breathe of fresh air!! Reckons is RA and to keep taking Vit D etc but also noted results said anaemic but it not mentioning Iron or B12, or what to do to rectify. This Doc said get back in and get more details and ensure answer. I will seek Thyroid test results, in meantime taking Iron & B12. Still on 30000IU Vit D and have reduced Magnesium which has made difference today?! This Doc took of shelf Prednisone 15mg to take for a week each morning. Sunday by lunch time?? OMG?!?!?! Ankles/Calves normal and I CAN USE MY HANDS!!!! Slept like a baby since Sunday!! Though today fingers still tingling …. await Rheumi and will continue on D3….

    Answered by  john.lightbody.jl22445600 on

  • IAW
    Participant
     IAW on

    This is just a thought and something to think about. You did say that this all came on “sudden”. There is no denying you do have Vitamin D deficiency and maybe have for quite sometime. My question is have you been on any vacations recently (maybe last 6 months?) that have taken you somewhere that you picked up something unusual? The other thing I looked up today was Lyme Disease and Scotland. At http://www.nhs.uk/Conditions/Lyme-disease/Pages/Introduction.aspx about halfway down gives a list of those places that are known risk areas. (Do NOT count on seeing a bulls eye rash. It does not happen as much as they lead you to believe.) Just thoughts.

    Answered by  IAW on
  •  john.lightbody.jl22445600 on

    Have appointment with Rheumatologist 10th May will ask regarding Lyme Disease, though would that specifically target hands? Find myself as of 22nd April since this all started having made no progress physically, with the only rescue for me being Prednisolone 10g per day. Started these after seeking help 26th March as hands were very sore and swollen and rest of body in pain also..Prednisolone had almost immediate effect! Was just a weeks supply and within 4 days started relapsing into painsville….have demanded from my own GP for more prednisolone to carry me through to 10th May hospital appointment. I’m hoping for vitamin D3 to start making some impact but not seeing as yet….still taking 20000IU per day, too much?? SHould i be taking Calcium as well?

    Answered by  john.lightbody.jl22445600 on

  • IAW
    Participant
     IAW on

    You asked above if Lyme would only target your hands? You have said before that your ankles and knees were swelling. You also said you were tired and had all over pain and/or stiffness. So with all of that is why I suggested Lyme.
    How is your depression?
    I thought you were taking 30,000iu of Vitamin D?? When did you go to 20,000 iu?
    If you do not think your diet has enough calcium, then take some.
    Did you ever get your actual thyroid level numbered results??
    I found this http://www.arthritis.org/living-with-arthritis/treatments/medication/drug-types/corticosteroids/corticosteroids-vitamin-d-deficiency.php. The prednisone “might” cause Vitamin D deficiency. Since you have been taking at least 20,000iu for a while now, I would insist that they retest your levels at the May 10th appointment because A. You were already deficient and B. What the Prednisone may or may not be doing to those levels. Once you have those results then let me know what they are!
    Also please try and check back here before May 10th appointment to see if I have added anything.

    Answered by  IAW on
  •  john.lightbody.jl22445600 on

    Update, finally got to see Rheumatologist 10th May. He was able to advise pretty quickly that it is indeed RA. All joints were x-rayed and numerous blood samples taken including CCP, Lyme Disease (on my request) T3/To, PTH etc, I then received a steroid injection and given oral DMARD prescription Sulfasalazine. 12th May attended my GP on their request to register fact diagnosed RA. GP had access to feedback on 2 tests from 10th, and they were raised Calcium levels, Kidneys not 100% and signs of Gout? (Uric acid?)?! This last week have been running non stop to Pee?! Told GP was on 20000IU of D3 daily, which she said may explain spike in calcium levels and to stop them just now await another blood test to recheck Calcium and Kidney function next week…..

    Answered by  john.lightbody.jl22445600 on

  • IAW
    Participant
     IAW on

    Thanks for updating me!
    The doctors will have to decide what to do about the “spiked” calcium levels. Meaning you do not take any Vitamin D or maybe a lower amount and the level will then stay in the normal range.

    Answered by  IAW on
  •  john.lightbody.jl22445600 on

    I was under impression taking raised amounts of D3 would help combat the RA?

    Answered by  john.lightbody.jl22445600 on

  • IAW
    Participant
     IAW on

    There are too many unknowns at this point. Sometimes when people have certain conditions/diseases, then the Vitamin D system gets “out of wack” and causes hypercalcemia you can read about them here at http://www.vitamindcouncil.org/further-topics/vitamin-d-hypersensitivity/. You have multiple autoimmune conditions going on at the same time. Vitamin D should help but maybe your system will only be able to handle a smaller amount or none at all if it gives you hypercalemia.
    Did you ever get any of the results from your thyroid tests that you had a while back?

    Answered by  IAW on